The physical and emotional long-term effects of having CHD are usually seen from the medical viewpoint. But increasingly we are aware that the clinic is not always aligned to what patients might actually want or feel. The ACHD team in Newcastle have joined the Approach IS II study lead by Philip Moons in Belgium. This international study will explore how patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs), differ between patients in different countries and also try to identify the healthcare needs of older adults with congenital heart disease, who may be quite frail. 

To find out more contact louise.coats@newcastle.ac.uk