Useful links https://www.ncl.ac.uk/https://bsmb.ac.uk/https://www.rarediseaseday.org/https://www.change-msca.eu/https://www.ukanet.org.uk/ecmage/https://mcds-therapy.eu/https://jgwpattersonfoundation.co.uk/https://dunhillmedical.org.uk/https://nc3rs.org.uk/