Registration for our annual #GeneticsMatters Rare Disease Day patient and public information day is now open. Join us for interesting presentations and hands-on demonstrations, meet the scientists, and find out more about rare disease research at Newcastle University and The Newcastle Upon Tyne Hospitals NHS Foundation Trust. The event is FREE to attend and refreshments will be provided. To register, click: https://lnkd.in/eSSbGNSD

We had a great event, with thought-provoking presentations, great discussion and interesting hands on tables and demonstrations.

Thank you to all the presenters, patients and attendees for giving up their Sunday and celebrating the International Rare Disease Day with us!

Together, we can move mountains.

Rare is many,

Rare is strong,

Rare is proud!

To register, please use the QR on the poster below:

Our flagship rare disease event is back!

A fun day of science, with hands on experiments, patient and scientist talks, and an opportunity to learn and network, Genetics Matters has become a feature in the North east’s rare disease calendar. Join us on the 2nd of March to celebrate rare diseases and rare disease research in the North East, share your experiences, and find out more about rare diseases.

The Great Hall at the Discovery Museum was abuzz with science and exciting conversations last Sunday as Newcastle university researchers, rare disease patients and members of the public gathered to celebrate the International Rare Disease Day.

With 104 attendees and 40 enthusiastic scientists, a wonderful panel debate on achievements and challenges in rare disease research, exciting hands on experiments (building a 3D skin model, DNA extraction, osteoarthritis diagnosis, muscle MRI scans, art installations and many more) and lovely food, we had an amazing day!

We’d like to thank all the presenters and attendees for participating in our event. We hope you enjoyed it as much as we did, and we hope to see you next year again!

Some feedback from our participants:

[The event] was great, no need for improvement!

Thank you for hosting such an amazing event!

Loved each and every bit.

Thank you for recommending this, I had a really great time! […] Everyone there was really nice and the activities were so fun

Many thanks to you all for giving your weekend to educate and entertain us.

We’re organising Genetics Matters again! Genetics Matters is a free annual event showcasing rare disease and genetic research at Newcastle, with hands-on experiments, laboratory demonstrations, scientist talks and free refreshments.

We’ll be at the Discovery Museum on the 25th of February, join us at http://tinyurl.com/3f4hwkks

Our annual International Rare Disease Day event is back. In 2024 it will be bigger and better, with more research tables, more satellite events and really interesting talks. Watch this space!

We had 100 people with us yesterday, despite Newcastle United playing at Wembley, raising awareness of rare diseases and rare disease research, chatting about science, performing experiments, and discussing aspects of medical research at Newcastle.

The room was buzzing with interesting conversation, and we have already had a lot of good feedback. Thank you to all the presenters and scientists, patient organisations and patients for participating, and thank you to everyone for coming and spending a Sunday afternoon with us. We really enjoyed the event and we hope that you did too.

See you next year!

Photos by Rachel Richman

Registration is now open for our FREE Genetics Matters event! Go to http://tinyurl.com/4rs83jbr to book, or scan the QR code on the poster. Hands-on research tables, friendly scientists and yummy cake, organised as part of the International Rare Disease Day. Please share!