Categories
LGBT+

Northern Pride March 2024

By Amber Marwick

Creative Writing MA Student

Northern Pride brought record numbers to Newcastle this year, partnering with NE1 to provide “a more accessible, unapologetically visible pride celebration”. In a pivot from the regular venue of the Town Moor, the Pride in the City festival sprawled entertainment across the city centre in a three-day takeover. As well as stalls and music filling the streets around Greys Monument, the event also saw families enjoying free crafts in the Assembly Rooms, local LGBTQ+ artists performing at the Curious Arts Stage, and party-goers heading to the ticketed arena in Times Square.

Sitting down for lunch on the Grey Street astroturf, we adjusted to the new surroundings. Among the bustle of shoppers and stallholders, the more open atmosphere of the Town Moor was certainly missed. But it was preferable to last year’s arrangement, where the financial pressures on the event were depressingly evident; half of the field had been barriered off as a VIP zone, and those of us unwilling to pay the ticket price peered over the metal fence in annoyance to get a view of the entertainment we’d previously taken for granted.

The new programme seems to have been a hit for local business, with data showing it brought £4M to the region. But in the wake of the event’s economic success, we can’t overlook the many freely-given moments of togetherness and solidarity which form the true backbone of the movement. While the entertainment schedule has evolved over the years, the annual march has remained a constant. And as over 16,500 people showed up in the stifling heat to demonstrate, it’s clear that the procession still proves to be the beating heart of the weekend.

This year, there was a renewed sense of urgency amongst the demonstrators. Palestinian flags were raised high among the usual sea of nylon rainbows and banners, and chants for trans rights were interspersed with calls for liberation beyond our own borders. Celebration walked hand-in-hand with outrage, as children blew whistles to the rhythm of “no borders, no nations, trans liberation”, and many laughed at a hastily-made cardboard sign which proudly announced “my cat is gay”. The crowd burst into dance on Northumberland Street to the tune of the YMCA, then into cries of “shame” as it passed Kings Gate- anger at the institution’s response to the ongoing encampment clearly reverberating across communities.

When I first attended Pride nearly ten years ago, I had less worldly concerns on my mind. At seventeen, I was not joining as a politically engaged member of the community, and I wasn’t old enough to enjoy the dance tents or club wristbands that would later form my typical Pride experience. Having yet to move away from home, it was the sense of freedom that drew me in. We sat on the grass as Belinda Carlisle took the main stage, and I watched with a bittersweet feeling- ‘Heaven is A Place on Earth’ was a family-favourite growing up, played often in our kitchen while tea was cooking on the hob. I thought about those many silly moments, all shared with someone that turned out to be less than accepting of my sexuality. A kind stranger offered to paint a rainbow on my cheek with a Crayola-style stick; it was a cheap and frivolous gift, but I was thrilled at the idea of wearing it for the rest of the day, before wiping it all off on the bus ride home.

I couldn’t help thinking about that stranger as we marched this year, my own crayola-style rainbow stick in my pocket, the faces of friends suitably painted around me. Behind us a brass band played Mama Mia by ABBA, and we danced and chanted along while the currents of the procession made its way past the mostly-cheering onlookers. With the cost-of-living weighing harder on those already experiencing barriers to healthcare and threats to personal safety, it was a relief to feel that the spirit of fun had not been lost- the more sombre sense of commitment I began with quickly turned into excited energy. Perhaps it is in these times of wider struggle that the value of Pride is felt the most, where joy and resistance are two sides of the same coin.

My partner stopped us at one point to wrap a flag around their shoulders, a make-shift shawl of pink, white, and blue. A stranger soon approached to offer a bumble bee, its happy face crocheted in the trans pride colours. It was frivolous, made only for one moment of kindness and fun- in fact there’s likely no problem in the world that can be solved by a crochet bee. But beyond the colourful battalion of the march, we knew well that kindness towards the trans community is an increasingly rare occurrence. When you live something every day, respite is just as necessary as outrage. That small moment of joy had the potential to be a rare gift for someone, and it was one of many that day which revealed that the role of Pride in the community is as important as ever.

When the circuit rounded back to the Civic Centre, there were mumbles of confusion. It seemed that many regular demonstrators were unaware of the drastic change in venue, their attendance at the march guaranteed without the knowledge of ticketed arenas and VIP wristbands. Groups dispersed and scrambled to make their own plans for the day, some disappointed with the abrupt anti-climax, and others eager to explore the new venues and festivities. Amidst the mix of feelings, one thing was abundantly clear while the success of Pride’s event programme continues to ebb and flow with the times, the community’s consistent commitment to Pride sends a powerful message: no matter what happens, we will show up to march.

Categories
Disability Working Group

Disability Working Group

By Dr Ruth Norris

The PHSI-EDI Committee had a presence at the PHSI summer research event on June 25th.

Disability has been flagged as a focus for the Committee this coming year. We are keen to hear your thoughts on tailoring disability support and guidance to best meet the needs of PHSI colleagues. Thanks to all those who contributed their suggestions on the day. If you have any further ideas on how we can expand our disability work or have an interest in supporting this project, please do get in touch: phsi_edi@newcastle.ac.uk

The Committee has also been working on increasing the awareness of disclosure of any disability (both as a staff member or student). Hopefully you will have seen this information in bimonthly PHSI newsletters.

More details can be found below:

Disability disclosure for all colleagues and students at Newcastle University

Newcastle University, including FMS, has fewer disclosures of disability than we would expect to see. Details below on how colleagues can disclose a disability. Sharing information about your disability helps NU work out what changes and support can be offered to you.

  • Staff processes for informing the university about a disability or long-term health condition can be found here
  • Students can update their information, including disclosure of disabilities, in S3P at any time.

Finally, special mention to Connor, Hiruni, Emmie, Ruth, and Viviana for their help on the day setting up and running the stand.

Categories
Uncategorised

Raising the Profile of the PHSI EDI Committee

By Ruth Norris

This month, the PHSI EDI committee has been raising awareness of the committee with a stand at the PHSI Spring Celebration Event. 

Thanks to all PHSI colleagues who stopped by on April 18th to say hello, to find out more about what we do and how we can help you, or to play one of our EDI games!

Special mention is given to Nicola, Richard, Annette, Ruth, Abisola, and Fiona for running and to Jill, Paul, and Sue for helping to set up the stand.

We had a great turn out and have collected some useful information to inform our onward planning to help develop the committee moving forward.

We will be reflecting on the responses from staff at this event in our next committee meeting and will use any data gained to inform our workstreams moving forward.

If you missed the event or were unable to provide any suggestions on the day. Don’t worry, we are still collating information using an online ‘suggestions box’  (for link, please see the latest PHSI newsletter), so there is still plenty of time to drop the committee a line.

In particular, we are still keen to hear from colleagues who have an interest in:

  • Getting involved with our blogs.
  • PGRs who would like to join the committee.
  • Colleagues with an interest in inputting into the Disability Working Group.
  • Any other suggestions for PHSI EDI focus this coming year.

Just a few things to recap:

The Committee’s Aims:

  • Actively promote dignity, respect, inclusivity and equal treatment among staff, students, and other stakeholders. 
  • Develop strategies to promote EDI in PHSI, by engaging staff and students in the process.
  • Promote new policies, procedures and best practice relating to equality and diversity in all aspects of our activities encompassing all protected characteristics.
  • Help shape and deliver PHSI EDI culture. 
  • Respond to changing circumstances in PHSI, the wider faculty, and university. 
  • Raise the profile and priority of EDI within PHSI.

What we do:

  • Bi-monthly EDI updates in the PHSI newsletter – includes links to blogs and upcoming EDI events.
  • Blogs (linked to themes in Newcastle University’s Inclusion Calendar). 
  • Book Club.
  • Organise events e.g. online keynote lecture ‘Holocaust Memorial Day & LGBT+ History Month from 2022) – you can still watch the recap online here: https://www.youtube.com/watch?v=CCJQ9mbvM5Q
  • Period Dignity Project.
  • Decolonising Research Project.
  • Disability Awareness Group.
  • EDI representation on PHSI executive & FMS EDI Committee.
  • Embed EDI in PHSI strategic plan.
  • Leadership and working group roles for the FMS Equality Project.
  • Contribute evidence to the Athena Swan application.
  • Returner’s Support Program champion.

How we can help you:

  • Support PHSI colleagues with an interest in EDI – especially those who wish to join the committee (including PGRs).
  • Promote PHSI colleague’s research by linking this work to Newcastle University’s Inclusion Calendar and EDI themes.
  • Develop your suggestions for EDI focuses that you would like to see the Committee focus on moving forward.
  • Ran into an EDI issue? Please contact us to see how we can help you.

Email: phsi_edi@newcastle.ac.uk

Categories
World Cancer Day

World Cancer Day

By Oliver Shannon & Ruth Norris

World Cancer Day, which occurs every year on 4th February, is an international initiative intended to raise awareness of cancer and take action to improve the prevention, detection, and treatment of this condition. In this article, we provide a brief outline of cancer and then include three separate cancer-related blogs by Dr. Fiona Malcomson (Senior Research Associate), Ruth Norris (PhD Student & Research Associate) and Dr. Christina Dobson (Senior Research Associate) on some of the promising cancer-related research going on within the Newcastle University Population Health Sciences Institute. 

Cancer – a term which refers to a collection of diseases affecting every part of the body – is one of the leading causes of death worldwide, accounting for around 1 in every 6 deaths.  Common types of cancer include breast, lung, colon, rectal, prostate, and liver. This condition occurs due to a transformation of normal, healthy cells into tumour cells via a series of processes that progress from a pre-cancerous lesion to a malignant tumour. These changes occur because of an interaction between an individual’s genetics and external agents (or carcinogens) which can increase cancer risk. 

It is estimated that up to half of all cancers could be prevented by avoiding cancer risk factors and maintaining a healthy lifestyle (more on this later in the blog from Dr. Fiona Malcomson).  Some of the things that we can do to help reduce the risk of developing cancer are shown in the image below.

 


Figure 1: Methods to reduce cancer risk (Image created by Oliver Shannon, information from https://www.who.int/news-room/fact-sheets/detail/cancer)

Cancer doesn’t affect everyone in the same way, and we know that certain groups of society may be less likely to receive a prompt diagnosis for cancer or, after diagnosis, obtain the treatment that they need (more on this in the blog by Ruth Norris below). There is clear evidence for inequalities in cancer care between patients of different ages, sexes and ethnicities – and, as discussed in more detail by Dr. Christina Dobson below, by geographical location too. Raising awareness of these issues and exploring potential solutions is one important way in which we can try to ensure equality for all individuals whose lives have been impacted by cancer. 

Blog 1: Dr. Fiona Malcomson, Senior Research Associate

Lifestyle factors including body fatness, diet and exercise affect one’s risk of getting cancer and may also be linked to chances of surviving after cancer diagnosis. Approximately 40% of cancers in the UK could be prevented if everyone adopted a healthy lifestyle. The World Cancer Research Fund (WCRF) and American Institute for Cancer Research (AICR) – two leading bodies focused on understanding, preventing, and treating cancer – published 10 lifestyle-based Cancer Prevention Recommendations including maintaining a

healthy body weight, being physically active, and eating little red and processed meats.

In the CALIPER UK Study, we are using a large UK dataset (UK Biobank) to explore whether greater adherence to these Cancer Prevention Recommendations is associated with a lower risk of developing cancer. Later down the line, we will also be investigating whether better adherence affects chances of survival in people who have been diagnosed with cancer.

The UK Biobank is an invaluable resource which has collected a wealth of data on over half a million participants, including socio-demographics (e.g., age, sex, ethnicity), lifestyle factors (e.g., diet, levels of physical activity), and collects data on health-related outcomes, including cancer diagnoses, during follow-up.

We will first assess associations between a standardised score (used to measure adherence to the Cancer Prevention Recommendations) and the risk of all cancers combined and for cancers for which there is strong evidence for links with lifestyle factors, such as breast and bowel cancers. Through some methods-based work, we will see whether we can improve assessment of adherence to these recommendations by creating different score versions, and explore whether this should be tailored for specific cancers. For example, a large amount of evidence exists for links between eating too little dietary fibre or eating too much red and processed meat and bowel cancer. So, perhaps a score which gives a greater weighting to intakes of these foods will work better to predict bowel cancer risk.

The findings from this study could help to guide lifestyle recommendations and public health policies for the UK population, and for cancer survivors, to reduce the risk of cancer and improve length, and quality, of life. We are also investigating sociodemographic differences in adherence to these Recommendations, as both cancer incidence and survival are socio-economically patterned. Our findings may provide on which specific recommendations for cancer prevention could be tailored, or targeted towards, those in different socioeconomic groups in the UK.

Blog 2: Ruth Norris, PhD Student & Research Assistant

Equality – it’s not the first word that comes to mind when thinking about (or facing) a cancer diagnosis. Yet fair treatment and opportunity for all in cancer care is unfortunately not guaranteed. Rather, for many patients, barriers such as age, gender, income, ethnicity, education, and where you live negatively impact experiences across the care pathway from diagnosis to treatment and through to end-of-life care. This so called “cancer care gap” is ingrained and affects everyone – not just those in the most disadvantaged groups. Fortunately, the Union for International Cancer Control’s 2022-2024 World Cancer Day campaign (Close the Care Gap) aims to raise awareness and advocate for change, and as someone with an interest in cancer inequities – this move is very much welcomed.

My research has focused on determining whether socio-economic status (SES) acts as a barrier to novel cancer treatment. We already know that a low SES is associated with reduced access to conventional cancer treatments (surgery, chemotherapy, and radiotherapy). However, the way we treat cancer is also changing – we now have increasing use of novel, targeted treatments tailored to individual tumour genetics and immunotherapies which use the immune system to attack the cancer. What we don’t know is whether access to these newer cancer treatments is fair.

Our initial work, reviewing studies addressing this question suggested that a low SES was associated with reduced access to novel treatments. Similar outcomes were found when we analysed real world cancer registry data from England linked with a new drug database – the Systemic Anti-Cancer Therapy (SACT) dataset:

  • Low SES reduces likelihood of new anti-cancer therapy receipt – even in a publicly funded healthcare system (English NHS).
  • Low SES is a barrier to new treatment access across a range of cancers.
  • In non-small cell lung cancer, patients living in the most deprived areas were 46% less likely to receive a novel therapy than those patients in the least deprived areas (Figure 2).

Figure 2: Likelihood (odds ratio) of novel anti-cancer therapy receipt by deprivation in non-small cell lung cancers diagnosed in England between 2012-2017. Multivariable model adjusted for: sex, age, diagnosis year, ethnicity, rural/urban indicator, stage, comorbidities & histology.

Moving forward, we still have some way to go to make cancer treatments equitable and to remove socio-economic barriers. First steps start with understanding why these barriers persist, followed by action to address imbalances. As one in two people will face a cancer diagnosis in their lifetimes, World Cancer Day 2023 serves as a reminder to all of us that “our time to act is now” if efforts to #CloseTheCareGap are to be successful.

For more information and to get involved, follow the campaign.

Blog 3: Dr. Christina Dobson, Senior Research Associate

World Cancer Day is a great opportunity to take stock and reflect on the diverse range of cancer research going on within the institute, and the shared- vision of reducing cancer inequalities and improving outcomes for patients. For instance, the COLO-SPEED research programme is galvanising patients, clinicians and academics to deliver world-leading endoscopy research into how we can prevent, diagnose and treat bowel cancer regionally (where we experience high health inequalities and deprivation), and nationally.

My work also focuses on inequalities and place, in relation to the experiences of rural patients. Rural cancer inequalities have been evidenced now for decades, but little research has been undertaken to understand the causes of this. Our recently published study identified barriers that rural patients face when it comes to seeking help for symptoms of possible bowel cancer. This work, funded by Yorkshire Cancer Research, showed that rural populations face specific barriers to early diagnosis, including:

– The financial and logistical constraints that people who are self-employed, particularly in seasonal industries (such as farming and tourism), face which can prevent them from seeking help about their symptoms.

– How rural living requires individuals to be self-sufficient, and stoic, qualities which can be detrimental when it comes to consulting GPs about symptoms early.

– And the importance of continuity of care, and a good relationship between GPs and patients, to encourage and empower patients to feel like they can consult.

Examining barriers to early diagnosis and survival for different patient groups, across the diagnostic pathway, is vital. Understanding the obstacles and challenges that different groups face enables us to go on to develop and tailor meaningful interventions that are acceptable to communities and can have a tangible impact on their diagnostic experiences, quality of life, and life expectancy.

Where can I learn more about cancer?

World Cancer Research Fund International:

An excellent resource for those interested in learning more about reducing cancer risk.

World Health Organisation:

The World Health Organisation Cancer fact sheet provides some great background information about the prevalence of cancer, its causes and treatments.

Cancer Research UK:

Check out the Cancer Research UK Cancer Research UK website for the latest developments in cancer research.

Categories
Black History Month Book Club

Book Club: Black History Month 2022

By Dr Abisola Balogun-Katung & PhD student Ania Barros Mendes Couchinho

This months PHSI EDI BOOK CLUB Abisola and Ania have put together a fantastic collection of books on Black History Month and support black businesses and booksellers.

Support Black Businesses

Afrori Books: https://afroribooks.co.uk/

Round Table Books: https://www.roundtablebooks.co.uk/shop-black-studies-module

African Bookstore: https://www.africanbookstore.net/search.asp

New Beacon Books: https://www.newbeaconbooks.com/

Black and British

David Olusoga

Black and British provide its reader with a thorough and vital history of black Britain. It provides the reader with an exposé of the lingering relationship between the people of Africa, the Caribbean and the British Isles, this book has rightfully been described as a “thrilling tale of excavation” and a ‘testimony to the rich experiences of Black people of Britain’. It is also available as a short, essential history for readers aged 12+.

A comprehensive and important history of black Britain

The Sunday Times

The Good Immigrant

Nikesh Shukla

The Good Immigrant brings together 21 thrilling Black, Asian and minority ethnic voices emerging in Britain. With a collection of poignant, challenging, sometimes angry, heartbreaking and humorous essays, it explores why immigrants come to the UK, why they stay and what it means to be ‘other’ in a foreign country miles away from home.  

The stories are sometimes funny, sometimes brutal, always honest … if I could, I’d push a copy of this through the letter box of every front door in Britain.

The Independent

Tribes

David Lammy

Tribes explores the benign and malignant effects of our need to belong in society. This genetically programmed and socially acquired need to belong manifests in positive ways through collaboratively achieving great successes, which individually cannot be achieved. On the other hand, this need can manifest in negative ways, particularly with globalisation and digitisation leading to new, more malicious forms of tribalism. David Lammy provides the reader with a fascinating and perceptive socio-political analysis of Britain and what it means to be British.

Lammy writes with nuance and sensitivity and accepts the lack of easy answers. But his core message is simple. We must cooperate more, compromise more, communicate more. Only connect, but offline.

Prospect

What White People Can Do Next

Emma Dabiri

Vital and empowering What White People Can Do Next teaches each of us how to be agents of change in the fight against racism and the establishment of a more just and equitable world. In this affecting and inspiring collection of essays, Emma Dabiri draws on both academic discipline and lived experience to probe the ways many of us are complacent and complicit—and can therefore combat—white supremacy. She outlines the actions we must take, including: Stopping the Denial, Interrogate Whiteness, Abandon Guilt, Redistribute Resources, Realize this s**t is killing you too . . . 

To move forward, we must begin to evaluate our prejudices, our social systems, and the ways in which white supremacy harms us all. Illuminating and practical, What White People Can Do Next is essential for everyone who wants to go beyond their current understanding and affect real—and lasting—change.

Concise, sure-footed and complete . . . a battle cry against racism for even the most socially aware . . . Dabiri’s reflections have been a very, very long time coming

Tanya Sweeny ― Irish Independent



In the Wake: On Blackness and Being

Christina Sharpe

This captivating and poetic piece of work unpacks the state and existence of Black beings in modern society. It Considers what binds Black lives together following the journey from slave ships to consciousness or what Sharpe labels ‘The Wake.’ The consciousness and awareness of Blackness that writers such as Shilliam (2015) and Adichie (2017) adopt in their work. Sharpe reinforces her idea of The Wake by defining it as a Black awareness of ‘skewed life chances, limited access to health and education, premature death, incarceration, impoverishment’ (Sharpe, 2016). This Black consciousness is what Sharpe aims to academically theorize and encapsulate in this text. Its four chapters, The Wake, The Ship, The Hold and The Weather, it cleverly addresses themes of postcolonialism, decoloniality and feminism.

Christina Sharpe’s deep engagement with the archive of Black knowledge production across theory, fiction, poetry and other intellectual endeavours offers an avalanche of new insights on how to think about anti-Blackness as a significant and important structuring element of the modern scene.

Cutting across theoretical genres, In the Wake will generate important intellectual debates and maybe even movements in Black studies, cultural studies, feminist studies and beyond. This is where cultural studies should have gone a long time ago

Rinaldo Walcott – author of Black Like Who?: Writing Black Canada

Things Fall Apart

Chinua Achebe

This emotive and comforting novel offers a Pan-African narrative completely free of Eurocentrism. The story of Okonkwo, a man of the Ibo tribe in Nigeria, tells a story of a way of life many modern Africans continue to mourn. It brings to light both the positive experiences of African life before colonisation and mirrors the fall of African customs and traditions towards the end of the 19th century.

The writer in whose company the prison walls fell down

Nelson Mandela

His courage and generosity are made manifest in the work

Toni Morrison

Small Island

Andrea Levy

A moving novel that tells the stories of a Black woman, a Black man, a white woman and a white man and the way in which their paths overlap unexpectedly. Set at the time of the Windrush era, Small Island tells the story of the Windrush generation. Levy taps into the unique racialised experiences of each individual, the gender roles set by both racial backgrounds and the socio-political experiences of all four individuals as England recovers from the 2nd World War.

Gives us a new urgent take on our past.

Vogue

Black Skin, White Mask

Franz Fanon

This timeless historical critique rewrites the history of colonialism from a lens that describes the transition of Africa towards Eurocentrism. Fanon discusses Africa’s heart-breaking psychological, physical, and cultural transformation that provides historical context for today’s socio-political landscape. A must-read for all those interested in Decoloniality, Black and postcolonial studies.

This century’s most compelling theorist of racism and colonialism

Angela Davis
Categories
World Alzheimer's Month

World Alzheimer’s Day: Interviews With PHSI Dementia Researchers

By Oliver Shannon & Connor D Richardson

Alzheimer’s disease – the most common form of dementia – has a huge economic and social burden, impacting the lives of millions of individuals and their families. Although there is currently no cure for this condition, ongoing research is continually improving our understanding of this condition and identifying ways to help mitigate risk. With World Alzheimer’s Day just around the corner (21st of September), we took the opportunity to interview key researchers in this area within the Newcastle University Population Health Sciences Institute. With insight from early career and more experienced researchers, these interviews provide a great introduction to Alzheimer’s Disease research within our Institute and guide what the future may hold and how people can get involved.

Prof. Dame Louise Robinson – Professor of Primary Care and Ageing; Regius Professor of Ageing

What does World Alzheimer’s day mean to you?

A global opportunity to continue to raise both public and professional awareness about dementia

What is your research area?

My research focuses on dementia care with the key aim of trying to improve the quality of care, and quality of life, for people living with dementia and their families. Recent projects address this area nationally, including the PRIDEM programme (https://research.ncl.ac.uk/pridem/) and international working with collaborators in Lower Middle-Income Countries through an NIHR Global Health Research Group (https://research.ncl.ac.uk/global_health_depec/). This work has been presented to the World Dementia Council and will be included as a case study in the WHO/ADI World Alzheimer Report on Post diagnostic care, due for release in autumn 2022.

How did you get into this sphere?

As a young GP many decades ago, I was distressed by the lack of support available to my patients diagnosed with dementia; compared to people with cancer or other long-term illnesses like diabetes, there was very little available.

How has this area changed since you first became involved?

Unfortunately, not a great deal despite a national Dementia strategy in 2009. Our PRIDEM programme has shown that this is still the case in England, with considerable inequalities in dementia care services which are focused on the first year after diagnosis and are often fragmented and fragile due to a lack of long-term funding commitment.

What are the key challenges?

Ensuring implementation and scale-up of key research findings into practice to make a real difference in people’s lives.

Dr. Andrea Fairley – Lecturer in Nutrition & Dietetics

What does World Alzheimer’s day mean to you?


As a researcher working in dementia prevention, World Alzheimer’s Day is an excellent opportunity to raise awareness and highlight what can be done to reduce our dementia risk. As this condition was historically seen as an inevitable part of the ageing process, it is important that the message of dementia prevention reaches the wider public and that we spread the message of how we can protect our brain health.

What is your research area?


I am a registered dietitian and lecturer in human nutrition and dietetics. I am actively involved in research, being specifically interested in the role of diet in cognitive decline and dementia prevention. I am interested in the design, development and testing of diet and lifestyle interventions to promote behaviour change among at-risk populations, particularly those at greater risk of cognitive decline.

How did you get into this sphere?


I became interested in public health nutrition through my work as a dietitian. While studying for a PhD at Queen’s University Belfast, I became fascinated by the field of diet and dementia prevention.

How has this area changed since you first became involved?


When I started my PhD and began researching this area, there had been an array of observational evidence conducted within the field of diet and dementia prevention and a few landmark trials. At that time (2015), larger multidomain intervention studies focusing on modifiable risk factors such as diet, lifestyle and cognitive strategies were in the pipeline. Since then, we have seen the results of these studies, notably the Finnish Geriatric Intervention Study to Prevent Cognitive Impairment and Disability (FINGER) trial. This multidomain intervention (diet, exercise, cognitive training, vascular risk monitoring) is applied in older people (60-77 years) at higher risk for dementia and has produced significant cognitive benefits after 2 years. This landmark study has inspired further research in this field to explore how these interventions are tailored among at-risk interventions – an area I am very much interested in!

What are the key challenges?


The research literature has shown significant associations between key nutrients and dietary patterns and reduced risk of cognitive decline and AD. Certainly, individual foods, or nutritional components such as Omega 3 fatty acids, or B vitamins, may be associated with reducing dementia risk. They may have a specific role to play in counteracting biological processes in the body that can contribute to cognitive decline. But as consumers, we don’t eat just one type of food. So, it is important to look at the diet as a whole – the nutrients in different foods can interact, and this combination may bring additional health benefits. There have been some intervention studies to test the effect of dietary patterns in dementia prevention, such as the Mediterranean diet, and these show promising results. However, we need to do more intervention research! Researchers are working to better understand how specific dietary components can influence cognition, how these foods affect brain health when consumed together and how to tailor dietary advice to specific countries, cultures and settings. When we think about changing our diets and lifestyles, we know that “one size does not necessarily fit all”. It is important to understand the food cultures and available resources of different countries to provide tailored, needs-specific dietary advice and support.

If you could give yourself one piece of advice as an ECR, what would that be?


Network, network, network! It can be so daunting as an ECR to put yourself out there but is so important to build connections and network, as you never know where it might lead. Having a LinkedIn or Twitter profile can be useful to get yourself noticed!

What is the future of dementia research?


I think the future is bright for dementia prevention research. This research area is getting a lot of attention, both through research funding and public engagement. Recently, we have seen huge advancements in dementia prevention by identifying modifiable risk factors that can be targeted across the life course. I am excited to see what future research in this area will bring!

How can people get involved?


Read more about dementia prevention and what you can do to promote brain health. Charities, such as The Alzheimer’s Society, have some useful resources. You can also get involved in dementia-related research – Join Dementia Research is a service providing new opportunities for people to play their part in beating dementia, connecting researchers with people who want to participate in studies. It is free to sign up and you will be directly matched to a study that meets your criteria.

Dr Connor Richardson – Post-Doctoral Research Associate

What is your research area?


My main area of research is in the Epidemiology of dementia and cognitive impairment. I work on large population-based cohorts to investigate the risks of dementia in the population over time with the Cognitive Function and Ageing Studies (CFAS). My most recent work involves using newer machine learning techniques to investigate dementia neuropathology.

How did you get into this sphere?


I was interested in dementia from the final year of my undergraduate biomedical sciences degree, my favourite modules being Biology of Ageing and Neuroscience; however, I did not enjoy lab-based science.

During my MSc in Public Health Research, I knew I wanted my thesis to be on dementia and quantitative methods. I was supervised by Katie Brittan and Blossom Stephan, looking at cognitive reserve and dementia. I enjoyed the project, so went on to work with Bloss, Louise Robinson and Fiona Matthews on my PhD looking at Mild Cognitive Impairment (MCI). Since then, I have been the CFAS statistician as a post-doc with Fiona Matthews.

How has this area changed since you first became involved?


Although I have worked in the field for a relatively short time I have noticed several changes. As I was beginning my PhD, the DSM version V was being published, which completely re-classified the diagnosis of dementia and MCI into Major and Minor Neurocognitive disorder, which remains controversial.

Similarly, I just attended the Alzheimer’s Association, where a debate was being held to redefine Alzheimer’s diseases based on biomarkers without clinical symptoms.

Closer to my own work, there is currently a huge expansion of data science and machine learning moving into the space of traditional epidemiology and statistical modelling.

Overall I think dementia research is quite an exciting area of research as things can change pretty quickly, and changes can often be pretty controversial.

What are the key challenges?


It’s a relatively small field in comparison to other medical research. The key challenges for me are probably similar to most researchers at my level, balancing career development and publishing and gaining experience with day-to-day work.
I have found that when at events like conferences, the dementia research network is extremely friendly!

If you could give yourself one piece of advice as an ECR, what would that be?


I am guilty of putting too much pressure on myself to do too many things at once. I am often reminded to take a step back, take a breath and think about one thing at a time.
I’ve recently realised the importance of setting work aside for a short time and reflecting on where I want to be and how to get there.

What is the future of dementia research?


I think new technology is moving the field very quickly; for example, there is huge momentum behind using imaging from MRI and PET scanning combined with AI/ machine learning to diagnose dementia earlier and earlier, if this is necessarily a good thing seems to be a hot debate at the moment. Unfortunately, this seems to limit the attention being paid to modifiable population risk.

There is also more emphasis on researching dementia among low and middle-income countries and being much more inclusive of minority and underrepresented groups in dementia research.

How can people get involved?


I think the Alzheimer’s society does a huge amount of engaging people in dementia research; they have massive amounts of information and training to become dementia friends so people can learn what living with dementia means.

Categories
World Alzheimer's Month

Connor Richardson Guest Speaker for Dementia Researcher Podcast:

Highlights from Alzheimer’s Association International Conference 2022 & underrepresentation in dementia research

While attending the Alzheimer’s Association conference, I was a guest speaker on the Dementia Researcher podcast. Among the two other guests, we all had one major highlight, a fantastic session on “Navigating the crisis of underrepresentation in ADRD research: New directions and best practices”. An eye-opening session focussed on the unique challenges facing memorised groups living with dementia, failures in research of including minority groups in research and fresh ideas to address underrepresentation.

Links to the podcast, information on Dementia Researcher, session descriptions and speakers are included below.

Dementia Researcher

Session Description:

Across a host of Western countries, persons from minority groups are increasingly recognized to be severely and persistently underrepresented in clinical research on Alzheimer’s disease and related disorders (ADRD). Early investigations into this problem consisted mainly of small, descriptive studies and bespoke interventions focused on participant-related barriers to research enrolment (like mistrust), often among persons of colour. This Featured Research Session will highlight recent conceptual and methodological advances in the field of recruitment, engagement, and retention (RER) science, present new findings from research being conducted in various regions of the United States, and call on ADRD investigators to action in identifying concrete ways to intervene amidst the current crisis of underrepresentation in clinical research. The first two presentations will discuss ongoing, transdisciplinary efforts to rigorously characterize historical and current issues impacting research participation across a range of marginalized and minority communities. The following three presentations will feature innovative approaches to increasing ADRD research participation within specific underrepresented populations. The final presentation will provide a rationale for expanding the concept of research inequities beyond biological disparities and systemic inequities, incorporating researcher-related barriers to research enrolment.

Session Presenters:

  • Kylie M Smith (Emory University, GA, USA) – Incorporating history into disparities research: A model for interdisciplinary collaboration and trust building
  • Nicole Taikeff (CARE Research Center Massachusetts General Hospital, MA, USA) – Early norming data for engagement and recruitment of diverse populations into ADRD research
  • Jennifer H Lingler (University of Pittsburgh Alzheimer’s Disease Research Center (ADRC), PA, USA) – Mechanisms by which culturally-informed narratives may promote ADRD research enrollment among African American adults
  • Jason D. Flatt (University of Nevada Las Vegas, NV, USA) – Promoting Inclusion of Sexual and Gender Minority Individuals in Aging and Alzheimer’s Disease and Related Dementias Research
  • Krystal R. Kittle (University of Nevada Las Vegas, NV, USA) – Caregiving Experiences and Health of LGBTQ+ Caregivers: Results from the Equality in Caregiving Study
  • Jonathan D. Jackson (Massachusetts General Hospital, Harvard Medical School, MA, USA) – A Methodological Framework for Investigating Diversity in Clinical Research
Categories
Elder Abuse

Elder Abuse Day

15 June 2022

Poster by Oliver Shannon

Categories
Book Club Elder Abuse

EDI Book Club: Elder Abuse Day

15th June

By Connor Richardson with Recommendations from the Lit and Phil.


Thank you for popping into the book club! Finding good recommendations around elder abuse has proved quite difficult! However, I figure as part of elder abuse day we should be celebrating ageing and older people. So I hope you enjoy these books in that sprirt.

Con

Happy Old Me: How to Live A Long Life, and Really Enjoy It

Hunter Davies | Memoir

On 8th February 2016, Margaret Forster lost her life to cancer of the spine. The days that followed for her husband, Hunter Davies, were carried out on autopilot: arrangements to be made, family and friends to be contacted. But how do you cope after you have lost your loved one? How do you carry on?

Ken Loach might have turned all this into a powerful social film, but the avuncular Davies sprinkles in so many cheery anecdotes that the book bounces along enjoyably

Sunday Times


As Hunter navigates what it means to be alone again after 55 years of marriage, coping with bereavement and being elderly (he still doesn’t believe he is), he shares his wisdom and lessons he has learnt living alone again. Revealing his emotional journey over the course of one year, as well as the often ignored practical implications of becoming widowed, he learns that, ultimately, bricks and mortar may change but the memories will remain. 

Part memoir, part self-helpHappy Old Me is a fitting, heart-felt tribute to the love of his life and a surprisingly amusing and informative book about an age, and stage in life, which we might all reach someday. The third book in Hunter Davies’ much-loved memoir series, which includes The Co-Op’s Got Bananas and A Life in the Day

You’re looking well: the surprising nature of getting old

Lewis Wolpert | Non-fiction

We now live longer today than at any time in history. In the UK, more people are aged over sixty-five than under sixteen and by 2050, over a third of the developed world will be over sixty. How should we deal with this phenomenon? What are the scientific reasons for ageing? And can – or should – we prevent it?

Lewis Wolpert, distinguished biologist and octogenarian, explores the scientific background and the implications of our ageing population. In this engaging investigation, he tackles every aspect of the subject from ageism to euthanasia to anti-ageing cream and, through it all, tries to better understand his own ageing. Witty, frank and often inspiring, Lewis Wolpert is the perfect guide to ‘looking very well’.

Gangsta Granny

David Walliams | Children

Another hilarious and moving novel from David Walliams, number one bestseller and fastest growing children s author in the country.

A story of prejudice and acceptance, funny lists and silly words, this new book has all the hallmarks of David s previous bestsellers.

Our hero Ben is bored beyond belief after he is made to stay at his grandma s house. She s the boringest grandma ever: all she wants to do is to play Scrabble, and eat cabbage soup. But there are two things Ben doesn t know about his grandma.

1) She was once an international jewel thief.

2) All her life, she has been plotting to steal the Crown Jewels, and now she needs Ben s help

Don’t bring me no rocking chair

John Halliday | Poetry

Gathering poems from Shakespeare to the present, Don’t Bring Me No Rocking Chair addresses ageing through the several ages of poetry. Now more than ever, as more of us live for longer, the idea of what it means to age or to grow old engages and concerns people of all ages.

One of the problems of ageing is the language we use to define it and the list of pejoratives associated with it, with attitudes to ageing ranging from ‘fatalism, denial, negative stereotyping and tunnel vision to fantasy’ (Professor Tom Kirkwood, Newcastle University). Poetry can help to give us a fresh language to think about ageing and these poems are chosen to fortify, celebrate, lament, grieve, rage and ridicule. There is not one way to age but neither can any of us truly stop our bodies from ageing.

In our youth-obsessed culture, there is something exquisitely subversive about a book that celebrates old age…As with all anthologies, its delight lies in revisiting old favourites and discovering poems one might not have come across otherwise

Juanita Coulson, The Lady.

Ageing is not a single phenomenon but complex, multiple, perplexing: experienced historically as well as individually. This anthology may not console but it can widen our perspectives, helping us to change what we can change: our attitudes. Joan Bakewell writes in the Foreword: ‘With age comes a growing thoughtfulness: what was it all for?

What have we made of our lives, what have we known of love, what have we enjoyed of beauty and how do we come to terms with our going? This remarkable book contains thoughts on all such concerns. Its variety is extensive but one thing is sustained throughout. The quality of ideas and expression is of the highest. On whichever page you alight there is something that will offer comfort, delight, and insight. While the world of money, ambition and worldly cares recedes, matters of the heart and spirit come to matter more. This book is the ideal companion on that journey.’ This anthology was prepared for the Newcastle Centre for the Literary Arts as part of the Societal Challenge Theme on Ageing at Newcastle University with support from the Institute of Ageing and Health, Newcastle University.

The Thursday Murder Club

Richard Osman | Fiction

In a peaceful retirement village, four unlikely friends meet up once a week to investigate unsolved murders.

But when a brutal killing takes place on their very doorstep, the Thursday Murder Club find themselves in the middle of their first live case.

Pure escapism

The Guardian

Elizabeth, Joyce, Ibrahim and Ron might be pushing eighty but they still have a few tricks up their sleeves.

Can our unorthodox but brilliant gang catch the killer before it’s too late?

Categories
Book Club World Refugee Day

Book Club: World Refugee Day

Monday 20th June 2022

By Connor Richardson with Recommendations from the Lit and Phil.


Persepolis

Marjane Satrapi | Graphic Novel

In powerful black-and-white comic strip images, Satrapi tells the story of her life in Tehran from ages six to fourteen, years that saw the overthrow of the Shah’s regime, the triumph of the Islamic Revolution, and the devastating effects of war with Iraq. The intelligent and outspoken only child of committed Marxists and the great-granddaughter of one of Iran’s last emperors, Marjane bears witness to a childhood uniquely entwined with the history of her country.

“Delectable. . . Dances with drama and insouciant wit.”

New York Times

Persepolis paints an unforgettable portrait of daily life in Iran and of the bewildering contradictions between home life and public life. Marjane’s child’s-eye view of dethroned emperors, state-sanctioned whippings, and heroes of the revolution allows us to learn as she does the history of this fascinating country and of her own extraordinary family. Intensely personal, profoundly political, and wholly original, Persepolis is at once a story of growing up and a reminder of the human cost of war and political repression. It shows how we carry on, with laughter and tears, in the face of absurdity. And, finally, it introduces us to an irresistible little girl with whom we cannot help but fall in love.

Exit West

Mohsin Hamid | Fiction

In a country teetering on the brink of civil war, two young people meet–sensual, fiercely independent Nadia and gentle, restrained Saeed. They embark on a furtive love affair, and are soon cloistered in a premature intimacy by the unrest roiling their city. When it explodes, turning familiar streets into a patchwork of checkpoints and bomb blasts, they begin to hear whispers about doors–doors that can whisk people far away, if perilously and for a price. As the violence escalates, Nadia and Saeed decide that they no longer have a choice. Leaving their homeland and their old lives behind, they find a door and step through. . . .

“Moving, audacious, and indelibly human.”

Entertainment Weekly

Exit West follows these remarkable characters as they emerge into an alien and uncertain future, struggling to hold on to each other, to their past, to the very sense of who they are. Profoundly intimate and powerfully inventive, it tells an unforgettable story of love, loyalty, and courage that is both completely of our time and for all time.

The day war came

Nicola Davies | Children’s

Imagine if, on an ordinary day, war came. Imagine it turned your town to rubble. Imagine going on a long and difficult journey – all alone. Imagine finding no welcome at the end of it. Then imagine a child who gives you something small but very, very precious…

There are few modern children’s books that make you cry. This is one of them.

The Times

When the government refused to allow 3000 child refugees to enter this country in 2016, Nicola Davies was so angry she wrote a poem. It started a campaign for which artists contributed drawings of chairs, symbolising a seat in a classroom, education, kindness, the hope of a future. The poem has become this book, movingly illustrated by Rebecca Cobb, which should prove a powerful aid for explaining the ongoing refugee crisis to younger readers.

We are displaced

Malala Yousafzai| Memoir

Nobel Peace Prize winner and bestselling author Malala Yousafzai introduces some of the faces behind the statistics and news stories we read or hear every day about the millions of people displaced worldwide.

A stirring and timely book.

The New York Times

Malala’s experiences visiting refugee camps caused her to reconsider her own displacement – first as an Internally Displaced Person when she was a young child in Pakistan, and then as an international activist who could travel anywhere in the world, except to the home she loved. In We Are Displaced, which is part memoir, part communal storytelling, Malala not only explores her own story of adjusting to a new life while longing for home, but she also shares the personal stories of some of the incredible girls she has met on her various journeys – girls who have lost their community, relatives, and often the only world they’ve ever known.

In a time of immigration crises, war and border conflicts, We Are Displaced is an important reminder from one of the world’s most prominent young activists that every single one of the 68.5 million currently displaced is a person – often a young person – with hopes and dreams, and that everyone deserves universal human rights and a safe home.