
“Genetics Matters” annual event serves to showcase genetic research and to give the patient and charity organisations a voice and a platform to interact with the members of general public. The theme of the Rare Disease Day in 2016 is “Patient Voice”, recognising the crucial role that patients play in research by voicing their needs and instigating change.
We would like patients or members of patient families to be present on the day and actively participate, sharing the presenting with our scientists. We believe that the patients’ voice is important in directing the course of scientific research and that it is important to remember that behind the tubes and microscope slides there is also a human story, and that we are all working towards a common goal.
This event is FREE to attend, but we have limited places available, so if you would like to attend, please book your place here:
http://forms.ncl.ac.uk/view.php?id=9395