Category Archives: Genetics Matters

Genetics Matters is back!

Save the date, our popular event is back on the 29th of February for one fun afternoon filled with science and cake.

This year we are meeting at the wonderful Great Hall at the Discovery Museum in Newcastle and will be talking about cancer gene therapy, male infertility, the 100,000 genomes project, mitochondrial donations, CRISPR/Cas9 gene editing, drug repurposing and many more hot medical research topics which may have caught your eye in the news. The event is FREE but please book to secure a place by clicking here: https://forms.ncl.ac.uk/view.php?id=6972326

Please spread the news amongst your friends and colleagues, the more the merrier!

Save the date – Genetics Matters 29th of February 2020

Our popular Genetics Matters event is back!

Save the date and come see us on Saturday the 29th of February for a fun afternoon filled with science and cake, as part of the International Rare Disease Day. Please email katarzyna.pirog@ncl.ac.uk if you’d like to take part and present and please spread the news amongst your friends and colleagues, the more the merrier!

From the International Rare Disease Day website:

“When the challenge of raising awareness for people affected by a rare disease still looms. On Rare Disease Day we must re-double our efforts. Re-think, re-envision, reimagine. Reframe what it means to be ‘rare’. In fact – rare isn’t scarce, rare isn’t infrequent, rare isn’t remote. Rare is not as rare as you think. The statistics speak for themselves. There are more than 300 million patients, each supported by family, friends and a team of carers, that make up the rare disease community worldwide. Over 6,000 different diseases. Collectively, they make up the third largest country in the world. Rare is many. Rare is strong. Rare is proud. The likely truth is that you know one of the 1 in 20 people affected by a rare disease. We need society to understand that millions of people living with a rare disease around the world face inequitable access to diagnosis, treatment and care. It’s time to take action for people living with a rare disease to have equal opportunities to realise their potential. [..] We need everyone to get involved and join the movement to reframe rare!”  

Genetics Matters a success!

The 5th edition of our flagship Genetics Matters event took place in our Institute on the 23rd of February. The event was very well attended, the presentations sparked lively and interesting discussions and we had a special reel showing in our Black Box.

Thank you all for coming on a sunny Saturday afternoon (and a match day!) to celebrate genetic research in Newcastle and to raise awareness of rare disease and the need for rare disease research.

Thank you very much for the wonderful afternoon, it helped me a lot with deciding academic science and researches’ role in the practice of Medicine – participant

The format was very good and the cakes very moreish!! The Pop Up cinema was an excellent idea. – participant

The 2 talks I heard [..] were both absolutely outstanding and interesting for me to hear as a researcher and clinician. – presenter

Pop-up cinema is coming to the IGM foyer this February

We’ve been involved in an exciting collaboration with Northumbria University the past few months, and we’re building a small cinema in the IGM foyer. We’re really exicted, come see for yourselves!

Black Box is a joint project by The Cultural Negotiation of Science (CNoS) at Northumbria University and the Institute of Genetic Medicine (IGM) at Newcastle University. Opening the door on the inner workings of genetic research, Black Box is a FREE pop-up cinema located in the IGM West Wing foyer showing a programme of creative film works inspired by and expanding upon genetic themes.

What do advances in genetics mean for the future of humanity and other species? How is genetics changing medicine? What do we mean by biotechnology? What possible genetic futures can we imagine?

The Black Box  pop-up cinema will feature 4 themed weeks, each screening a short (60-90min) reel of 5-10min movies. The themes have been inspired by the issues and topics in genetic research and are:

  • 4th-8th February – FUTURE
  • 11th-15th February – IDENTITY
  • 18th-22nd February – LIFE
  • 25th-28th February – KINSHIP