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Category Archives: Genetics Matters
Save the date – Genetics Matters 24th February 2018
Our International Rare Disease Day event is back!
Save the date and come see us on Saturday the 24th February for a fun afternoon filled with science and cake 🙂
To book your FREE place, click here
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Newcastle Rare Disease Showcase 31st October 2017
On the 31st of October 2017 we are organising a research showcase in collaboration with Findacure. Members of the public, patient organisations, clinical researchers and scientists all wellcome, please see below for details.
Registration is now open for Genetics Matters 2017!
With hands on activities, chatty scientists and lots of interesting presentations about genetics, this event attracts over 100 participants every year.
Come join us for a Free afternoon of informal chatting about science, and find out about state of the art research at Newcastle University. Oh, and cake!
Booking is essential, please book your place here: http://tinyurl.com/h3bfqno
2017 Rare Disease Day and Genetics Matters
The Theme of this year’s International Rare Disease Day is Research (see here for details)
The Insitute of genetic Medicine would like to invite members of the public and patient organisations to participate in a week long programme of hands on research, meet the scientist sessions and informal workshops that will take place at the Discovery Museum 20-16th of February 2017. Come meet us and find out about rare disease research and genomic medicine in the North East!
Join hands to make the voice of rare diseases heard (Rare Disease Day 2016)!
A show of hands from the Institute of Genetic Medicine today, to raise awareness of the international Rare Disease Day and the importance of rare disease research.
The image was shared via Twitter and email with the larger community today.
1 in 17 people in the EU is affected by a rare condition. That’s 3.5 million people in the UK alone! Although individually rare, together the rare conditions affect more people than cancer and AIDS combined.
Let’s all unite to make the rare disease voice heard!
Genetics Matters event a success!
On the 27th of February 2016 the IGM held their popular “Genetics Matters” event at the International Centre for Life, as part of the international Rare Disease Day. The day was a huge success and included presentations form the leading Newcastle University scientists and patient organisations as well as meet the scientist tables, giving the participants a chance to chat about rare diseases and hear about the exciting state of the art research at Newcastle University.
We would like to thank all the participants, presenters and patient group representatives for making this event so informative and enjoyable. Together we will make the voice of rare diseases heard!
For more information and photos from the event please visit: https://blogs.ncl.ac.uk/igmengagement/27th-february-2016-genetics-matters/
27th February 2016 – Genetics Matters!
We are pleased to announce we’ll be hosting our popular Genetics Matters event again on the 27th of February 2016 as part of the International Rare Disease Day. Come meet the scientists, touch real specimens, chat about rare diseases and hear about the exciting state of the art research at Newcastle University.
“Genetics Matters” annual event serves to showcase genetic research and to give the patient and charity organisations a voice and a platform to interact with the members of general public. The theme of the Rare Disease Day in 2016 is “Patient Voice”, recognising the crucial role that patients play in research by voicing their needs and instigating change.
We would like patients or members of patient families to be present on the day and actively participate, sharing the presenting with our scientists. We believe that the patients’ voice is important in directing the course of scientific research and that it is important to remember that behind the tubes and microscope slides there is also a human story, and that we are all working towards a common goal.
This event is FREE to attend, but we have limited places available, so if you would like to attend, please book your place here:
Genetics Matters! 27th February 2015
This year for Rare Disease Day 2015 we helped organise and will be participating in the Genetics Matters event at the Great North Museum in Newcastle:
We will be presenting our best research in genetics and rare diseases, answering questions, engaging in debates and presenting hands on research tables. There are over 7,000 known rare diseases, most of which are genetic.
1 in 17 people will be affected by a rare disease at some point in their lives. This amounts to a staggering 3.5 million people in the UK alone! Genetic research and research into Rare Diseases may not attract much media attention but it is of high importance for the modern developed societies.
Come see us at the Great North Museum on the 27th February 2015 (Rare Disease Day) to learn more
The full programme can be viewed here Genetics Matters 2015 final programme
28th February 2014 – Rare Disease Day
SYBIL EU-FP7 consortium members at the IGM embarked on a fun tour of Newcastle to raise awareness of rare disease research. The researchers from Prof Michael Briggs’s and Dr Kasia Pirog’s labs donned cartilage research themed T-shirts and went on a tour of the iconic monuments of Newcastle to chat to the public about the importance of rare disease research. This was complemented by a Twitter and social media campaign in order to reach a wider audience in Newcastle and in the UK.
