It can tell us a lot

Next week is Jeans for Genes day, a UK-wide fundraising event to raise money for children with life altering genetic conditions. As someone who has worked with children and families affected by chromosomal conditions such as Williams syndrome and Downs’ syndrome, I have always been struck by the resilience and determination of all those affected. Also their positive approach to ‘just getting on with it’, usually still with (the biggest and brightest) smiles. When I first began my work with these families, I was met with the same word over and over: Heterogeneity. Compared to what I’d read and researched about individuals with autism, a disorder with no known genetic marker and huge amounts of variation from one individual to the next, my expectations of those with Williams syndrome were that they were all going to be ‘the same’. Which couldn’t have been more wrong. Because even in ‘heterogeneity’, where by definition there is uniformity, the reality is huge amounts of diversity. No child I ever worked with, even with the same standardised ability score or genetic deletion, was ever ‘the same’. And this is where diversity is not just something that makes working with the families more of a pleasure, but becomes scientifically important. Because those small, tiny differences might be the key to what tells us more about a particular disorder: How biology interacts with environment, or where we can target change. Working with the families affected by these disorders was, without doubt, the most enjoyable, rewarding and memorable part of my PhD experience. So get involved in Jeans for Genes day and hear more about the fantastic work these charities do. And the amazing, diverse, bunch of people you could be supporting…

Discoveries

We are thrilled to be working with The Discovery Museum over autumn, helping them to assess the impact and effectiveness of their Play & Invent programme in changing gender attitudes. The museum are doing some fantastic work with young children to encourage and nurture more open-minded views about gender-neutral career roles and role models. We will be working with the team to consider how the activities are benefiting children and their families, and where they can be built on to be even more successful.We will also be collaborating with the museum on a series of ‘women in science’ events, where some of our excellent female scientists and researchers will be presenting their work, inspiring the future scientists of tomorrow!

Watch this space for more info on specific events and to see the results of the impact assessment…

Blood Matters

Bright Red logo

Did you know that September was blood cancer awareness month? In order to promote and share all of the excellent research that Newcastle University does on blood cancers and the fight against them, our Institute of Cellular Medicine are running a research day in collaboration with Bright Red, open to the public. Laboratory Manager Sarah Pagan has written a blog post with more information.

The event will take place on 23rd September and registration is free so get signed up today!

Boys in dresses?

Last week John Lewis became the first UK retailer to abandon gender categories on their own-brand children’s clothing. Their head of children’s wear explained the decision, stating ““We do not want to reinforce gender stereotypes…and instead want to provide greater choice and variety to our customers.” Hoorah to that!

A quick Google search for ‘boys dresses’ to find a suitable picture for this post resulted only in what you see above. Something out of Tudor times. Or from another continent. John Lewis are the first UK clothing chain to acknowledge that perhaps the enforced labelling of what a boy or girl ‘should’ wear is similarly archaic and culturally constrained. Rather than re-designing their clothing range, they have simply ditched the labels and abandoned the separate sections characteristic of most clothes stores.

But is this ‘political correctness’ gone mad? One MP has criticised the decision saying “Boys and girls labels and signs are informative. I think removing them could be very confusing for the consumer… I cannot see many customers buying a dress for their six-year-old boy.” He is, perhaps, missing the point. Which is exactly that we need to move away from this mentality that a certain type of clothing is meant for one sex or the other.

We should also give parents some credit. Moving the pasta next to the jam in a supermarket doesn’t send your average adult into turmoil because they wouldn’t expect those two things to be together. They might need to ask the first time. But then they’ll get it. Perhaps no boy really wants to wear a skirt. But is that because none of the other boys are doing it yet? Or because mum or dad walks straight past the ‘girls’ section in the store? Maybe little girls do want to wear pink flowery dresses, and that’s fine.They’re still on the shelves. It’s just now, they will be on the shelf next to the purple dinosaur top or the pink star shorts. And parents won’t be dictated to as to which child they’re designed for.

 

Annual event?

Empty conference

With the new academic year just about upon us, the Guardian has published two articles online this week about the accessibility of academic conferences. The first focuses on disability and how too many conferences, perhaps without intention, exclude a large disabled contingent simply by the nature of their design. The article claims that accessible routes on transport, access to rooms and lecture halls, and often long and intensive days all act as significant barriers for anyone with a disability. Importantly, the article also address the more ‘hidden’ disabilities, such as the social difficulties someone with autism might face at a large conference dinner, or the stresses associated with needing to follow a strict diet without reassurance this will be provided.The fact is that worries about these potential obstacles to a smooth conference are preventing certain academics from attending them. Which means we are missing out on their expertise, ideas and knowledge when relatively simple measures could be put into place to make their experience better. It might not be intentional. But it’s still discrimination.

Another barrier to access at conferences highlighted in a different article is a financial one. In recent years, the nature of conferences has changed considerably, moving from small University-based gatherings to delegations in their thousands at expensive hotels, complete with a programme of social events. Costs have soared. Which means that many early career researchers with miniscule budgets for academic travel are being excluded by default. This means that the delegations tend to be comprised of the Big Grant Guys: The professors and senior academics who attend every year to network with the same people and present work from the same labs. Which is all well and good, if it was interspersed with some new faces to learn from them who would bring their own fresh ideas. But if they can’t afford to go, does anything really move forwards?

Our EDI team in the Faculty of Medical Sciences has been working on an events Code of Practice (CoP) to address exactly these issues. We want to make sure that nobody  is excluded from attending an event, regardless of their background or disability. Where possible, all of our events and workshops are free to attend and we work closely with units across the faculty to find ways to better support early career researchers to attend external conferences. Our new CoP encourages event organisers to think carefully about sectors they are recruiting from to ensure as diverse a mix of speakers and delegates as possible. It also prompts organisers to consider aspects such as accessibility for disabilities, and providing a sensitive and comfortable environment for all.

We would encourage more conference organisers to consider the wider spectrum of potential delegates in future, to provide accessible and affordable access to what are incredibly useful forums for change and ideas…

Talking Equality, Diversity & Inclusion in the Faculty of Medical Sciences and at Newcastle University.